On “Positive Attitude”

XKCD.com posted a comic strip called “Positive Attitude.” In just three frames, the faceless, nameless stick figures capture a common American experience: the mandate for positive thinking in the face of illness.

1. After telling a service provider that s/he is sick and scared, the provider explains to the patient that having a good attitude is vitally important: “Think positively and you’ll get better.”

2. When the patient starts to inquire about occasionally feeling sad, afraid, or “like crap” the provider interjects that, “If you don’t recover, it will be your fault.”

3. After the patient admits to the provider that this statement makes him or her feel worse, the provider questions the patient and demands that s/he stop making such statements: “See? You’re doing this to yourself…Stop it!”

The demand for optimism not only prevails in American culture (as Barbara Ehrenreich also points out in Bright-Sided), it saturates pink ribbon culture. Ads, images, TV shows, and personal stories perpetuate the demand for inspiring optimism and provide positive reinforcement whenever it is attained. Normalization, hope, transcendence, and the omission of negativity or even realism positions optimism to be the cornerstone of survivorship. Optimism takes perfect form in the she-roic breast cancer survivor, an idealized caricature who smiles through the tears, maintains hope, is transformed for the better, and ultimately wins her battle against breast cancer.

Most of the diagnosed women I have met do not fit the description of the she-ro, but some of them aspire to it to varying degrees. The desire to beat the illness is the ultimate aim, but optimism resonates too. Illnesses present the diagnosed with opportunities for reflection and change that may have positive effects on their lives. They might assess their priorities or relationships, spend time differently, and appreciate aspects of their lives that were less visible prior to the illness. They might also feel compassion and understanding in ways that promote the types of solidarity that are so visible in voluntarism and public gatherings. Yes, illness can result in positive outcomes. At the same time, illness itself is not usually joyful and celebratory. It is discomfiting at best, painful and deadly at worst.

Facing medical uncertainty, deciphering scientific information, making decisions in the face of conflicting data, adapting to a changed body, experiencing lingering side effects, being forced to change or relinquish careers, adjusting to new family roles and dynamics to accommodate the illness, confronting one’s mortality…these are just a few of the aspects of diagnosis that might lead to feelings and expressions that are anything but upbeat. Yet, I have heard numerous accounts of diagnosed women being “kicked out” of support groups, chat rooms, and conversations when trying to articulate their concerns about this side of illness; feeling that others do not want to know how they are doing unless their responses are positive; Or of doctors (similar to the practitioner in the comic strip) reprimanding them for having a negative attitude.

The focus on individual optimism obfuscates the unsettling realities of illness, but it also diverts attention from the social determinants of health—such as treatment modalities, access to care, support networks, and other factors known to influence healing processes. When the overemphasis on positive thinking places the burden of healing on the sick, the diagnosed might “try to be happy” when they feel differently, and then blame themselves if they cannot maintain constant cheer. In this scenario, optimism itself can be an added stressor that may contribute to other aspects of poor health. Ultimately, the optimism dictum in pink ribbon culture creates a controlling image: the she-ro is a triumphant survivor. By definition she lives on, suggesting that the women who do not survive, simply, were not optimistic enough.

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6 comments to On “Positive Attitude”

  • Great article Gayle. In fact it’s completely exhausting trying to always be the positive and upbeat heroic “survivor”. I really think this concept of the “she-roic survivor” was invented just to make everybody else feel better. There is a dark side to this disease, and it’s not something that anyone likes to admit or talk about openly. Why ? Because we’re brave and strong survivors who are not supposed to show any chinks in our armor? Because being negative will supposedly make us succumb to our disease quicker ? I’ve said this before, but if I really believed that positive attitude had any scientific and physiological effect on the progress of my disease, I would be so radiantly happy that the sun would shine from my proverbial “you-know-what”. To the positive thought police ? It’s my disease and I have to live with it. Let me feel what I feel. l I am only human, after all.

  • Yes Gayle. Exactly. And the sense of not wanting to respond to others, unless it is positive, results in immense feelings of isolation.

  • Here is a post by the Accidental Amazon that also speaks to societal pressures to conform to a particular way of being a cancer survivor.

    http://accidentalamazon.com/blog/2010/02/02/cancer-happens/

  • It’s interesting. Elizabeth Edwards also spoke about being only human. Of course, humanity comes with a full range of emotions and experiences, the darkness and the light. To be only human is good enough.

  • Registered Nurse

    I believe in a positive attitude, but that doesn’t mean one walks around constantly smiling with all of there various symptoms from a lousy disease. It means try not to be depressed . Pray for better outcomes. Don’t go out without a positive fight for survival.
    My husband had colon cancer and he never gave up when the going got rough, but he said, ” God will take me home when he is ready for me”. He was still up in his wheelchair, caring for other people two days before he died. He was my hero.
    my heart, thoughts and prayers go out to all who are affected by this terrible disease.
    TO BE TRULY HUMAN IS GOOD ENOUGH!

  • Thank you for sharing this. I imagine that even a positive attitude could take many forms. Having support systems in place to help us through difficult times helps too.

To speak her truth, she needed to give her words and identity away, to a trusted poet and friend @stevedavenport breastcancerconsortium.net/ov…

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* GAYLE IN THE MEDIA *

"Seeing clearly through the pink haze" Toronto Sun

*Sad face*: Being happy does not help you live longer" New Scientist

How should we address breast cancer when norms continually change? The Guardian

Your Fun 'No Bra Day' Photos Are Overshadowing Terminal Breast Cancer Patients Broadly

Backlash against “pinkwashing” of breast cancer awareness campaigns BMJ

Breast Cancer to Rise 50 Percent by 2030? Hey, Not So Fast! Health News Review

Breast Cancer: The Flaws in the Cause iafrica.com

How to Make the Biggest Impact With Your Breast Cancer Donations Money

The Very Pink, Very Controversial Business of Breast Cancer Awareness Racked

NFL, Pink Ribbons Not Enough to Win over Women CNN

3 Questions We Need to Answer for Breast Cancer Awareness Month Chronicle of Philanthropy

The problem with National Breast Cancer Awareness Month Women's Health Magazine

Pink Ribbon Envy: Living with an Uncool Cancer The Nib

A Year After Bombings, Some Say 'Boston Strong' Has Gone Overboard NPR, All Things Considered

Canadian Mammogram Study KCRW, NPR Affiliate

Time to Debunk the Mammography Myth CNN

Breast Cancer: Awareness, Activism & Pinkwashing NPR Charlotte

Buying Pink Al Jazeera's The Stream Watch »

The Pink Backlash Orlando Sentinel

Why Jolie's Test Costs So Much CNN

Preventative Mastectomies: Disease and Deception BlogTalkRadio

Angelina Jolie and the 'Breast Cancer Gene' KCRW

Our Feel-Good War on Breast Cancer The New York Times Magazine.

The Story Behind the Pink Ribbon Campaign Sisters Talk Radio

WISH Interview Women's International Summit for Health

Making Cancer About The Patient, Not The Body Part CBS Pittsburgh

Sexy breast cancer campaigns anger many patients USA Today

The perils of pink The Daily

Komen pink campaign creates breast-cancer blues for some Dallas Morning News

A yellow flag for the NFL's pink New York Daily

Gayle Sulik named #7 in SharecareNow’s Top 10 Online Influencers in Breast Cancer

Breast cancer cancer causes so easily derailed Philly Inquirer

Komen Charity Under Microscope for Funding, Science Reuters

The Fight Against Cancer - And Abortion? Salon.com

Susan G. Komen For the Cure defunds Planned Parenthood. In Deep with Angie Coiro

Amid Breast Cancer Month, Is there Pink Fatigue? NPR's All Things Considered

How is Breast Cancer Culture Undermining Women's Health? America’s Radio News Network

Pink Ribbon Culture and Breast Cancer The Kojo Nnamdi Show

The Big Business of Breast Cancer
Marie Claire

Does Breast Cancer Awareness Month Crowd Out Other Diseases? Slate

Pink Inc. Has Many Starting to See Red The Sacramento Bee

Get Your Pink Off Ottawa Citizen

Komen Pink Ribbons Raise Green and Questions USA Today

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