Review of “A Breast Cancer Alphabet” by Madhulika Sikka

A Breast Cancer Alphabet (soon to be released) is straight-forward, concise, and honest book by news executive Madhulika Sikka that breathes new life into a breast cancer world too often drowning in symbolism, cliche, and product placement. The short (2- to 5-page) entries offer 26 personal reflections — from A (“anxiety”) to Zzzz’s (meaning, “sleep”) — that speak to the contours of her diagnosis and treatment for breast cancer, uncertainty amid mountains of information, and how none of the signposts in Cancerland really prepares anyone for the trip. Each letter shares a glimpse of how Sikka made sense of, and navigated, her breast cancer but also opens a new conversation about one of the most talked about, venerated, and commercialized diseases in American culture.

I learned something from each letter of Madhulika Sikka’s alphabet. I share a few of her letters and the words they stand for (excerpted directly from the book or summarized in my own words.)

Sikka CoverAnxiety, different from fear or worry or concern, is often triggered by the anticipation of future events. And all you can anticipate is bad. Anxiety is a cancer companion, attached to you, sometimes in the background, sometimes front and center, but always there. The good news is that reality is never as dark as the places an anxious mind can take you.

Cancerland: One minute you’re minding your own business, living your humdrum life, and the next you’re thrust into this strange land of surgeries, and drugs and side effects, and pain and anxiety…a mysterious trip. You received no notice, no clear map, and no schedule. You don’t know when it is going to end. It’s like walking through the wardrobe and entering a secret society.

Hair has occupied an inflated place in women’s lives since we were little girls, out of proportion to so much other stuff. How many hours of your life have you spent on your hair? But what happens to hair is important. There were times when I was up in the middle of the night and saw a scary thing in the mirror: a bald me with no eyebrows and sallow skin and a face so puffed up from steroids that I looked like a billiard ball or Nosferatu. The hair thing is a BIG DEAL.

Indignity. If you are aware of the breast cancer culture that built up over the last two decades, you might think you’re entering a world of fuzzy pink gauze, soft teddy bears and garlands of ribbons–a land of sparkling brightness personified by women who are happy and smiling while they’re battling disease, the “she-roes” (rhymes with heroes). For some, a cocoon of cotton candy somehow cushions this ferocious disease, making it seem nonthreatening, just another part of life’s passage, like puberty or marriage or childbirth. Actually, there is not much in Cancerland that is pink or gauzy, and failing to recognize that is one of the many indignities of breast cancer.

Journey is often used to describe the breast cancer experience, a path with a beginning, middle, and end, after which a person is changed. The word seems completely and utterly inappropriate, inadequate to describe a process in which the course of treatment, despite advances in modern science, is still slash, poison, burn, or some combination thereof. To me, a journey is an excursion from one place to another, implying wonder or exploration, enchantment or romance. My breast cancer was not mystical, or enchanting or exotic. My breast cancer was not and is not a journey. Breast cancer is a disease. It’s okay to treat it like one.

Sex. Cancerland is a place where, as the late Christopher Hitchens put it “there seems to be almost no talk of sex.” With breast cancer, if there is any discussion at all, it is likely to be if you are of childbearing age and it is more likely to be about fertility than it is about sexuality. Yet the National Cancer Institute lists intimacy as one of the parts of your life that can be severely affected by a diagnosis of cancer. Your sex life, sort of like your taste buds, your energy level, and your hair, is affected by your treatment. As one of my doctors who actually did bring it up said, “It’s like a muscle, you have to keep using it!”

Warrior. As a breast cancer patient I am deemed to be a warrior in an army made up entirely of conscripts. I have been pressed into battle, part of the “war against cancer.” The language is inevitably military. Battle this disease. Defeat it. Kick the enemy’s ass. We patients are front-line infantry. For those with breast cancer our insignia is the pink ribbon, and we must wear it proudly. But even conscripts in a regular army get some training. We, on the other hand? Who is going to help me with my battle plan, be my logistics team, or finance this war? I am not woman warrior. I am just a woman who has been diagnosed with a horrible disease.

Madhulika Sikka speaks my language. A Breast Cancer Alphabet is approachable, even light. But it’s not fluffy. There are no pink unicorns or pretense that a spoonful of sugar helped the medicine go down. Madhulika Sikka’s alphabet is a window into the real. It thoughtfully reflects upon a situation as it is, for her, in this historical moment. But what I love most about A Breast Cancer Alphabet is the space it opens up around language. Sikka’s alphabetical musings share aspects of breast cancer that are often, unless you’re in the right circles, unspoken. By giving them voice and situating them within the broader cultural context, she invites readers to think about the power and the limits of language and culture. In doing so, she encourages readers to think about their own alphabet(s).

What would your letters be? This one quickly comes to my mind.

R is for Realism: The attitude or practice of accepting a situation as it is and being prepared to deal with it accordingly.

I submitted this letter as a contribution to A Breast Cancer Alphabet‘s page on tumblr (a mini-blogging site that allows people to post text, photos, quotes, links, music, and videos.)

  • A Breast Cancer Alphabet may be pre-ordered here.
  • For readers who would like to submit their own letters to a breast cancer alphabet, they may do so here.

Be Sociable, Share!

2 comments to Review of “A Breast Cancer Alphabet” by Madhulika Sikka

  • Mary

    “A Breast Cancer Alphabet” by Madhulika Sikka. Yes, Gayle, from the above review Madhulika Sikka definitely has the letter R. down pat. I could identify with all of the above. Thank you for bringing this important work to my attention!!
    My own little contribution:
    D. Denial of Coverage
    I am appealing, as we speak, the denial of the only medical test, for those at high risk that is of any use in my follow up, after two breast cancers. I’m confident that I will prevail even though my PCP was unwilling to provide the medical records I needed, to prove my case. I had to by pass the “gate keeper” to get them. I am nothing if not tenacious! I am a former negotiator. I know how to prove a case.

  • Mary

    I preordered A Breast Cancer Alphabet” by Madhulika Sikka and have access to it as of last week. She is so right on and does speak my language. She describes the experience perfectly, in all its “indignity”

"women urged to get screened because it might save their lives. But that’s only 1 possible outcome, and it’s the least likely one" @cragcrest

“Pink Ribbon Blues”

Paperback includes a new Introduction on fundraising controversies and a color insert with images of, and reactions to, the pinking of breast cancer (2012).

Praise » 

Flyer »

Press Release »

Hardback Cover »

Paperback Cover »

Request Review Copies »

Order the Paperback »


"Seeing clearly through the pink haze" Toronto Sun

*Sad face*: Being happy does not help you live longer" New Scientist

How should we address breast cancer when norms continually change? The Guardian

Your Fun 'No Bra Day' Photos Are Overshadowing Terminal Breast Cancer Patients Broadly

Backlash against “pinkwashing” of breast cancer awareness campaigns BMJ

Breast Cancer to Rise 50 Percent by 2030? Hey, Not So Fast! Health News Review

Breast Cancer: The Flaws in the Cause

How to Make the Biggest Impact With Your Breast Cancer Donations Money

The Very Pink, Very Controversial Business of Breast Cancer Awareness Racked

NFL, Pink Ribbons Not Enough to Win over Women CNN

3 Questions We Need to Answer for Breast Cancer Awareness Month Chronicle of Philanthropy

The problem with National Breast Cancer Awareness Month Women's Health Magazine

Pink Ribbon Envy: Living with an Uncool Cancer The Nib

A Year After Bombings, Some Say 'Boston Strong' Has Gone Overboard NPR, All Things Considered

Canadian Mammogram Study KCRW, NPR Affiliate

Time to Debunk the Mammography Myth CNN

Breast Cancer: Awareness, Activism & Pinkwashing NPR Charlotte

Buying Pink Al Jazeera's The Stream Watch »

The Pink Backlash Orlando Sentinel

Why Jolie's Test Costs So Much CNN

Preventative Mastectomies: Disease and Deception BlogTalkRadio

Angelina Jolie and the 'Breast Cancer Gene' KCRW

Our Feel-Good War on Breast Cancer The New York Times Magazine.

The Story Behind the Pink Ribbon Campaign Sisters Talk Radio

WISH Interview Women's International Summit for Health

Making Cancer About The Patient, Not The Body Part CBS Pittsburgh

Sexy breast cancer campaigns anger many patients USA Today

The perils of pink The Daily

Komen pink campaign creates breast-cancer blues for some Dallas Morning News

A yellow flag for the NFL's pink New York Daily

Gayle Sulik named #7 in SharecareNow’s Top 10 Online Influencers in Breast Cancer

Breast cancer cancer causes so easily derailed Philly Inquirer

Komen Charity Under Microscope for Funding, Science Reuters

The Fight Against Cancer - And Abortion?

Susan G. Komen For the Cure defunds Planned Parenthood. In Deep with Angie Coiro

Amid Breast Cancer Month, Is there Pink Fatigue? NPR's All Things Considered

How is Breast Cancer Culture Undermining Women's Health? America’s Radio News Network

Pink Ribbon Culture and Breast Cancer The Kojo Nnamdi Show

The Big Business of Breast Cancer
Marie Claire

Does Breast Cancer Awareness Month Crowd Out Other Diseases? Slate

Pink Inc. Has Many Starting to See Red The Sacramento Bee

Get Your Pink Off Ottawa Citizen

Komen Pink Ribbons Raise Green and Questions USA Today