When the Human Genome Project started in 1990 there were fewer than 100 genes associated with human diseases. The first genetic mutation (for Huntington’s disease) was identified in 1986, just a few years before the Project started. After more than a decade of technological innovation and about $3.8 billion, a team of scientists across more than forty research sites succeeded in mapping the entire sequence of human DNA. The project completed two years ahead of schedule in 2003, enabling scientists to sequence the more than 3 billion subunits of the . . . → Read More: Patients, Patents, and Profits in a Genomic Age
I’m pleased to have written a guest editorial for KomenWatch about the recent scandal involving the Komen organization.
KomenWatch (www.komenwatch.org) is a public service website aimed at “sharing information and generating critical discussion about the largest breast cancer fundraiser in the world, Susan G. Komen for the Cure®.” The KomenWatch website includes a large, searchable database of news sources and other articles that highlight public concerns about the Komen organization and/or its role in contributing to the splintering of the breast cancer movement and to the overt commercialization . . . → Read More: “The Emperor Has No Clothes”: Komen for the Cure Exposed
Breast Cancer Action (BCAction) in the San Francisco Bay area was one of the first breast cancer organizations to raise concerns formally about the cancer industry and profiteering in the name of breast cancer. In 2002 Breast Cancer Action started the Think Before You Pink® (TB4UP) campaign, which calls for transparency and accountability by companies that take part in breast cancer fundraising, and encourages consumers to ask critical questions about pink ribbon promotions. As part of the Think Before You Pink campaign, BCAction coined the term “pinkwasher.”
A pinkwasher is a company or . . . → Read More: 8. Taking Action Against Pinkwashing: An Interview with Breast Cancer Action’s Karuna Jaggar
A message from Breast Cancer Action:
Why does BCA so fiercely object to Breast Cancer Awareness Month? What is so wrong with pink ribbon marketing? Why on earth would corporations involved in the treatment and diagnosis of women with breast cancer try to control how the public understands the disease?
Curious about the answers to these questions? Join us for the first of our monthly webinars, “The Politics of Breast Cancer”- a crash course on the “pinking” of breast cancer, environmental causes of . . . → Read More: “The Politics of Breast Cancer” Webinar: Sign Up Today!
When Breast Cancer Action asked if I would be interested in writing a letter of support for their organization, I said YES without hesitation.
How could I not support this organization? BCA’s focus on root causes and systemic issues benefits not only the cause of breast cancer but extends to patients’ rights, environmental protections, social disparities, safe and effective treatments, and truth in advertising. As my letter of support (below) indicates, BCA is an active part of the SOLUTION to a grave social problem. If you’re . . . → Read More: My Letter of Support for Breast Cancer Action
Last August Breast Cancer Action–the organization well known for phrases such as “pinkwashing” and “Think Before You Pink”– announced the retirement of executive director Barbara Brenner following 15 years of service and leadership. I remember thinking to myself, “Wow, I wonder who they’ll find to fill Barbara’s shoes?” After all, those are some pretty big shoes.
During Brenner’s tenure, the organization advanced evidence-based policy related to screening mammography, challenged the patenting of the breast cancer genes BRCA1 & BRCA2, successfully urged the FDA to . . . → Read More: BCA’s New Executive Director, Karuna Jaggar