The PINK White Elephant

According to Wikipedia, “the term “white elephant” refers to an extravagant but burdensome gift which cannot be easily disposed of, supposedly after the King of Siam gifted rare albino elephants to courtiers who had displeased him, that they might be ruined by the animals’ upkeep costs.” The term is also fitting for a recent campaign by Kohl’s department store in partnership with Susan G. Komen [for the Cure]. Apparently, thirty years after the donning of the age of breast cancer awareness there is now a need to start a conversation about breast cancer.

I would argue, and have argued, that there is definitely a need to change the conversation on breast cancer; get real about breast cancer; acknowledge the misinformation, trivialization, and commercialization of breast cancer; demand transparency and accountability of stakeholders in the breast cancer industry. I started the Breast Cancer Consortium with this goal front and center. But the Kohl’s-Komen campaign is not about that. It’s about buying and displaying pink.

And, it’s about doing so while advertising for a large corporation and a breast cancer charity that is trying to improve its tarnished reputation after a series of missteps involving pinkwashing, trademark feuds, funding allocations, the Planned Parenthood scandal, questionable marketing tactics, lack of transparency, the misuse of scientific information in advertising, and, among other things, a lack of serious attention to metastatic disease.

Kohls-campaign-talkpink-web


Indeed, metastatic breast cancer has been the elephant in the PINK room for years.

In an interview I did on May 27th, 2011 with the founder of METAvivor Research and Support, Inc., CJ Corneliussen-James, I said as much.

Metastasis is the proverbial elephant in the room that keeps breast cancer mortality statistics from declining. It is the story that, according to CJ, ”the media does not want to hear and the big money organizations do not want to publicize.” She continued,

“No one really wants to know about the three deaths over the past two weeks in my group of 33 local women, or the two others presently in hospice care, or the young mother with the six-month old who was diagnosed with extensive metastasis just six weeks before the delivery of her first child…The cancer/breast cancer organizations tug at the heartstrings of the public by starting their speeches with the tragic tale of someone they loved, who died. But when the collected funds are divided up, the BC Mets community is all but forgotten. Primary breast cancer, or prevention and early detection are the attention-getters and the funding recipients.”

The Metastatic Breast Cancer Network and METAvivor Research and Support, Inc. – the organization CJ founded in 2007 – [were] the only national organizations dedicated to metastatic breast cancer. This may explain in part why only a fraction of research in the United States examines metastatic tumors and processes. In 2008 Journalist Clifton Leaf reported in Cancer World that ironically, “the vast majority of research grants and drugs are not aimed at combating what actually kills people.” Metastatic breast cancer researcher Dr. Danny Welch astonished attendees at a meeting of the National Breast Cancer Coalition when he stated that only 1000 researchers study breast cancer metastasis worldwide. For CJ, this is not good enough.

“While early detection has been successful in terms of diagnosing more people at stage 0 or 1, even stage zero patients can and do develop invasive breast cancers that metastasize. Many breast cancers by their very nature will continue to go undetected until they have progressed to stage II, III or even IV.”

Missing from public accounts. Missing from support networks. Missing from awareness campaigns. Missing from research agendas. And then just, missing.

When CJ was diagnosed with breast cancer in 2004, she was well aware of the support systems for the newly diagnosed. Her local hospital had a program called Survivors Offering Support (SOS) that provided year-long volunteer mentors to help people through their treatment. There were conferences, support programs, gifts, fundraisers, and lots of pink. After the cancer metastasized to her lung less than a year after completing her treatment (surgery, chemotherapy, and radiation), CJ entered a very different world. This time there was no mentor, no help, and no flurry of gifts. She felt deserted.

Fortunately the former Lieutenant Colonel had experience dealing with the deserted. She knew how to investigate foreign territory, how to find resources, how to galvanize people to action, how to recover the missing. When CJ called the founder of SOS to ask what they offered to people with “BC Mets,” Denise O’Neill answered sympathetically, “nothing.” CJ immediately started to collect materials and create a support system.

What began with an 8-person kick-off party in December 2007 quickly grew into a strong, volunteer-led non-profit organization called METAvivor Research and Support, Inc. Run mostly by those who have metastatic breast cancer, the organization was created to increase awareness, support, and research specifically for metastatic breast cancer.

Aligned with its mission to bring metastatic breast cancer to the table, METAvivor launched a fundraising campaign in October 2012 called MBC Aware with the tagline, “Don’t Ignore Stage IV, The Elephant in the Pink Room.” Here is the advertisement.

MBCAware2012web


If you think the new Kohl’s-Komen campaign resembles the 2012 METAvivor campaign you would be correct. The elephant clearly stands out. But as Kathi Kolb explains in her blog post Komen & Kohl’s Klueless Kampaign,

“Not only does [the Kohl-Komen campaign] co-opt the elephant-in-the-room metaphor that METAvivor used, it’s the wrong elephant. To wit, the campaign’s tagline is, “Together we can start the conversation.”

And whereas the Kohl’s-Komen compaign asks consumers not to ignore the PINK elephant, METAvivor’s asked people not to ignore Stage IV.” Yes, Komen did join other organizations in a metastatic breast cancer alliance late last year, but the organization has much to answer for with regard to its inattention to the metastatic community over the past three decades. This campaign doesn’t help. Kolb writes further that the site page goes on to say,

We’ve all heard of the elephant in the room. This spring, Kohl’s partners with Susan G. Komen to take on the pink elephant in the room — the topic of breast cancer. It’s a conversation no one wants to have, but one of the things we must talk about. Start the conversation today with #TalkPink.

Kolb retorts:

“Oh, sure. As long as no one mentions the real elephant in the room — metastatic breast cancer — you know, the kind that causes death. Wouldn’t want to spoil anyone’s shopping experience, would we?”

The similarities in the campaigns are striking, so much so that “CJ” Corneliussen-James contacted Kohl’s headquarters last week. CJ was promised that the Kohl’s president would call her on Friday (Feb. 22). She never received the call.

The most basic acceptable resolution for the Kohl’s-Komen campaign would be to remove the elephant metaphor entirely and incorporate evidence-based information about breast cancer, including metastatic breast cancer into the campaign. Many advocates would also like to see attention to the trivialization and commercialization of the disease, but that’s a tall order.

In the meantime there have been efforts like this one from blogger, The Sarcastic Boob, to answer the Kohl’s-Komen call to “start a conversation.”

Scorchy Occupy PinkTalk


This is probably not the conversation they were looking for. But, this extravagant but burdensome white elephant may yet be disposed. Take a look for yourself.

 If you are so moved, join the conversation and tweet it out to #talkpink.


Related Articles and Blog Posts:

  • Outrage, by Lori Marx-Rubiner, Regrounding, February 21, 2014.
  • Komen & Kohl’s Klueless Kampaign, by Kathi Kolb, Accidental Amazon, February 22, 2014.
  • Integrity Always Matters, by Nancy Stordahl, Nancy’s Point, February 27, 2014.
  • Occupy #TalkPink, The Sarcastic Boob, February 27, 2014.
  • Pinkwashing the Elephant in the Room, by Victoria Colliver, SF Gate, March 4, 2014.
  • Why I Am Anti-Komen, by Lara Huffman, Get Up Swinging, March 5, 2014.
  • METAvivor Won’t Go Quietly Into the Night, News In Marketing, March 6, 2014.

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4 comments to The PINK White Elephant

  • Thanks for citing my post, Gayle.

    It’s amazing to look at that string of Komen’s previous gaffs, which you list in your third paragraph, and recall the outcry that each one of them caused in the breast cancer community. And yet, it doesn’t appear that Komen has learned from any of these prior missteps, and instead has made yet another, possibly one of their most callous and careless to date.

    And speaking of elephants, it is said they never forget. Komen evidently does. But the rest of us certainly do not.

  • Excellent point about the long memory of elephants, Kathi. That string of previous gaffs doesn’t even list them all. Not even close. If one of the points of remembering is to reflect, learn, and make more skillful decisions, then it would do Komen some good to look at that list, just as a start. — GS

  • Kathleen Cahill

    Once again Komen is holding out their proverbial hand for monies. Stealing intellectual property without a care in the world. Metavivor has had The elephant in the room since inception, so where does Komen get off stealing it to teach awareness? Please show me one person who knows absolutely nothing about Breast Cancer! As a stage IV Metavivor, How Dare they ignore us!? They have made a very negative name in the Breast Cancer Community and now they want to turn a blind eye that women and men are still dying from their money maker! Brinker is a disgrace to her sister and all of us who are Stage IV!

  • Mary

    Isn’t this a branding issue as well? If I recall correctly, Komen has successfully defended its rights in various “branding” issues in court thus taking them out of the realm of its “competitors”. So who gets “the elephant in the room”? Just a thought, I do realize “that the elephant in the room”, because of historic use, cannot be “branded”. Just another ridiculous Komen/Kohl’s ploy!

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* GAYLE IN THE MEDIA *

"Seeing clearly through the pink haze" Toronto Sun

*Sad face*: Being happy does not help you live longer" New Scientist

How should we address breast cancer when norms continually change? The Guardian

Your Fun 'No Bra Day' Photos Are Overshadowing Terminal Breast Cancer Patients Broadly

Backlash against “pinkwashing” of breast cancer awareness campaigns BMJ

Breast Cancer to Rise 50 Percent by 2030? Hey, Not So Fast! Health News Review

Breast Cancer: The Flaws in the Cause iafrica.com

How to Make the Biggest Impact With Your Breast Cancer Donations Money

The Very Pink, Very Controversial Business of Breast Cancer Awareness Racked

NFL, Pink Ribbons Not Enough to Win over Women CNN

3 Questions We Need to Answer for Breast Cancer Awareness Month Chronicle of Philanthropy

The problem with National Breast Cancer Awareness Month Women's Health Magazine

Pink Ribbon Envy: Living with an Uncool Cancer The Nib

A Year After Bombings, Some Say 'Boston Strong' Has Gone Overboard NPR, All Things Considered

Canadian Mammogram Study KCRW, NPR Affiliate

Time to Debunk the Mammography Myth CNN

Breast Cancer: Awareness, Activism & Pinkwashing NPR Charlotte

Buying Pink Al Jazeera's The Stream Watch »

The Pink Backlash Orlando Sentinel

Why Jolie's Test Costs So Much CNN

Preventative Mastectomies: Disease and Deception BlogTalkRadio

Angelina Jolie and the 'Breast Cancer Gene' KCRW

Our Feel-Good War on Breast Cancer The New York Times Magazine.

The Story Behind the Pink Ribbon Campaign Sisters Talk Radio

WISH Interview Women's International Summit for Health

Making Cancer About The Patient, Not The Body Part CBS Pittsburgh

Sexy breast cancer campaigns anger many patients USA Today

The perils of pink The Daily

Komen pink campaign creates breast-cancer blues for some Dallas Morning News

A yellow flag for the NFL's pink New York Daily

Gayle Sulik named #7 in SharecareNow’s Top 10 Online Influencers in Breast Cancer

Breast cancer cancer causes so easily derailed Philly Inquirer

Komen Charity Under Microscope for Funding, Science Reuters

The Fight Against Cancer - And Abortion? Salon.com

Susan G. Komen For the Cure defunds Planned Parenthood. In Deep with Angie Coiro

Amid Breast Cancer Month, Is there Pink Fatigue? NPR's All Things Considered

How is Breast Cancer Culture Undermining Women's Health? America’s Radio News Network

Pink Ribbon Culture and Breast Cancer The Kojo Nnamdi Show

The Big Business of Breast Cancer
Marie Claire

Does Breast Cancer Awareness Month Crowd Out Other Diseases? Slate

Pink Inc. Has Many Starting to See Red The Sacramento Bee

Get Your Pink Off Ottawa Citizen

Komen Pink Ribbons Raise Green and Questions USA Today

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