SURVEY NOW CLOSED.
Dian Corneliussen-James, also known as CJ, founded METAvivor Research and Support, Inc. in 2007 to increase awareness, support, and research specifically oriented to metastatic breast cancer, or BC Mets.
Although there are an estimated 150-250 thousand people in the United States with BC Mets, little is really known about this population. According to NCI data the five-year survival rate is only about 20 percent and the average prognosis is two to four years. Metastatic breast cancer accounts for 98-100 percent of the nearly 41,000 women and men who die from breast cancer each year. Beyond these high-level statistics, there is little information on the actual disease and even less known about the impact of BC mets on the lives of those who are dealing with it. CJ is out to change that, and we can help.
This November the Advanced Breast Cancer First Consensus Conference will be held in Lisbon Portugal. The aim of the conference is to create strong international collaboration in clinical and translational research that could lead to faster advances and evidence-based standards of care. CJ is planning to submit a report on the status of BC Mets and constructed a survey to gather information.
The survey — which is available at http://www.surveymonkey.com/s/3TYNY27 — is in depth and inquires about the person’s demographic information, diagnosis, employment, social security disability, health insurance (both within and outside of the U.S.), finances, family issues, support programs, and coping skills. Participation is anonymous, and participants are free to skip any questions that do not apply or that they do not wish to answer.
If you have metastatic breast cancer, please complete METAvivor’s anonymous survey as soon as possible, no later than July 14th.
The survey will be available through July 14th due to conference paper submission deadlines, so please share this survey widely (and quickly) with your communities to encourage the largest possible response rate.
Thank you for your help.
For more information about CJ and METAvivor, see “Dian Corneliussen-James: A Woman On A Mission.”
