Komen By The Numbers: Education In Focus

Pink Ribbon Blues is pleased to republish the third essay about Komen’s financial situation by Anna Rachnel, titled “Komen By The Numbers: Education In Focus.” The essay was first published on February 9, 2011 on her blog, The Cancer Culture Chronicles.

As a woman, do you remember when you first became aware of the importance of being vigilant about your health? I’m forty years old now,  but I feel like I’ve always known.  I grew up in Australia, and went to high school in the 1980’s where we had a very strong health and sex education curriculum.  I think this where I must have learned about checking for abnormalities in my breasts as well as the importance of regular cervical cancer screenings.  I also seem to recall my primary care doctor giving me a lesson on how to check my breasts and being a very good student, I listened and religiously checked myself and also went for my regular Pap tests.

This knowledge served me well when I noticed, through self-examination, a difference in one of my breasts back in 2004 when I was thirty-three.  Not a lump; nothing really obvious; just different.  And that was when the real battle began.  Because I didn’t have an obvious lump, presented no apparent risk factors and initial tests were inconclusive, I was waved away by my medical practitioner at the time and told to seek “breast massage” as a possible therapy for my imaginary problem.  (See my post “How Did I Get Here?” for the unbelievable story of my initial diagnosis).  After deciding that I would follow my intuition that something was wrong,  I sought a second opinion.  Well the rest, as they say, is history and here I am today at forty years old blogging about my experiences as a woman living with metastatic breast cancer.

I’ve often wondered though what led me to be so intuitive about my body?  Was it the health and sex education that I received in high school? Was it that good? Was it the doctor I had seen throughout my teens and early twenties who instilled in me this sense of vigilance? And what kind of medical education did that nurse practitioner receive, that led her to wave me away that day despite my protestations?  Me, a person who at the time had presented with StageIIIA breast cancer, despite absolutely no risk factors?

But that’s the problem with breast cancer education isn’t it?  Because the nature of this disease is that we don’t really know when and who it’s going to strike next.  Without proven research behind it, breast cancer education is a minefield of uncertain efficacy and a haphazard business of unproven conjecture.

Yet public education is a popular mission for many of our  breast cancer charities.  If the goal is to educate, it’s a relatively easy mission  to fulfill.  Produce educational resources – mission accomplished. But it’s an expensive undertaking, even though it’s not necessarily helping to reduce breast cancer incidence.

A Closer Look At Komen’s Education Program

Continuing my series of investigations into the activities of our nation’s largest breast cancer fundraiser, Susan G. Komen for the Cure® (“Komen”), in this post I shine the spotlight on Komen’s Education program. (Previous posts in this series are available at “Komen By The Numbers” and “Komen By The Numbers: The Context of Research”.)

For the financial year ended March 31st, 2009, the Komen organization earned some $331.3 million in total Net Public Support and Other Revenue.  The following chart highlights how the $331.3 million was spent both in dollar terms and expressed as a percentage of Net Public Support and Other Revenue.

The Education program received the highest allocation of $135.5 million, or 41% of total Net Public Support and Other Revenue; in fact,  its highest annual percentage allocation for the six-year period from 2004 to 2009.  The Research program received only $70.1 million, or 21% of total Net Public Support and Other Revenue; indeed its lowest annual percentage allocation for the six-year period from 2004 to 2009.  (For further information on how Komen’s program spending has changed over time, please refer to “Komen By The Numbers:  The Context of Research”).

Komen’s position on their funding priorities are clear, as corporate spokesperson, Andrea Rader stated on Alicia Staley’s recent blog post.

“Research is just one piece of delivering cures for cancer. Education is critical: even today, many women don’t know they’re at risk for breast cancer, or they continue to believe myths like underwire bras cause cancer (they don’t).

Once women are educated, they need screening at the appropriate time.  And if they’re diagnosed, they need access to care, where treatments developed through research can help them.  Many women and men also need some help getting through their treatment, and they need someone fighting for them.

That’s why we fund all of it: research, education, screening, treatment programs and advocacy work.”

And it’s true, Komen does fund all of it. But $135.5 million for Education?  Almost double the amount allocated to the Research program? $135.5 million sure seems like a lot of money.  How much of this figure is actually spent on Education?

After reviewing Komen’s audited financial statements, and the Education program allocations for each of the six years from 2004-2009, I produced table summaries (attached at the bottom of this post), which show how Komen spent each year’s Education program allocation.

In reading the tables below and summarized in the following chart, consider the following example.  In 2009, from an Education program allocation of $135.5 million, Komen made actual education awards and grants of $46.7 million or 34% of the total Education allocation.  Other notable expenses included $11.6 million on Salaries; $13.6 million on Professional fees (generally includes legal and accounting fees); $6.1 million on Production expenses for Race for The Cure; $4.9 million on Printing and Publications; $2.9M on Postage and Shipping; $2.5M om Travel;  $1.5M on Conferences and remaining operating expenses totaling $45.4M million.  To summarize, actual Education grants accounted for 34% of the Education allocation of $135.5 million. Education program operating expenses accounted for 66% of the Education allocation of $135.5 million.

Indeed for the entire six year period from 2004-2009, the average percentage spent on actual Education awards and grants was only 37% of the total Education allocation, with the remaining 63% spent on Education program operating expenses.

What does Education Entail?

The ostensibly high Eduction program operating expenses may be partially explained if Komen is producing much of its Education material  and programs in-house which might include brochures, audio-visual resources, other breast cancer educational information, upkeep of the Komen website, in addition to awarding grants to outside organizations.

Relevant to its Education program, Komen’s 2009 Annual Report states:

  • More that 3 million print and audio-visual educational materials with life-saving messages were distributed to  Affiliates, grantees and the general public in 2009.
  • In the first quarter of the year, our breast health messages reached 4 million people through Anuncio, a service  providing patient education in English and Spanish in doctors’ offices, malls and in most HEB pharmacies in south Texas communities near Houston, College Station and Austin. This year, they’ve expanded their reach to include Atlanta markets.
  • Our Breast Care Helpline staff answered about 3,000 calls and 300 emails during just one quarter of 2009.
  • In less than six months, more than 80,000 fact sheets have been downloaded from the Understanding Breast  Cancer section of our Web site, komen.org.

Komen provides only limited discussion of its Education program in its  2009 Annual Report, so it is difficult to say with any precision whether the Education program operating expenses are reasonable or exactly what kinds of educational activities are being funded.  It is possible to search Komen’s website for domestic affiliate grants, however grant classifications and amounts are not specified.  (Click here to see an affiliate grant keyword search of “2009”).

There is clearly no debate that Komen is fulfilling it’s priority to “educate” the public about breast cancer.  But I have to question whether the $135.5 million  Komen spent on its Education program in 2009 represents value for money for it’s many, many donors.

After all, we can educate about apparent risk factors; so-called prevention measures like exercise, healthy diet, lifestyle factors and so on, but for so many women who have been diagnosed, these factors do not sufficiently explain their breast cancers.  We can educate on the advantages of early detection, but there is no medical certainty that a woman won’t experience recurrence or metastasis in the near or far future.   We can educate about the importance of self-examinations and mammograms, yet these screening methods are no guarantee that a breast cancer tumor will be detected.  We can educate women about available treatments, but this is no substitute for game-changing research and the scientific facts that women need in making decisions about their treatment options.  Research is still lacking in all of these areas.  We are educating the public about a disease that has no cure and for which our knowledge is still extremely limited.

Why does Komen continue to pour money into breast cancer education and awareness programs, at ever-increasing rates and at the expense of research which could potentially alter the course of our breast cancer epidemic? Why we do have hundreds of breast cancer organizations producing the same educational information, all incurring their own costs in doing so,  and decreasing the overall funding pool available for potentially life-saving research?  When are our nation’s largest breast cancer fundraisers going to realize this duplication of efforts with respect to education is, quite simply, a colossal waste of money?  When are our breast cancer fundraisers going to realize the economic synergies of sharing and integrating their Education programs?

I’m not saying that breast cancer education isn’t an important facet in dealing with this disease epidemic.  But all the education in the world is never going to provide us with a cure or the kinds of treatments that will allow us to live long and productive lives.  I’m simply questioning whether there is a better and more economically efficient way  for our breast cancer charities to fulfill their breast cancer education missions.

For that to happen there needs to be a spirit of cooperation and a common goal that is neutral to the spoils of corporate partnerships, sponsorships and other business incentives.  The $542.5 million spent by Komen on its Education program from 2004-2009 sure is a lot of money for us to be getting our priorities wrong with respect to this disease.

********************

Page 1 of 2: Financial Years 2004-2006

Page 2 of 2: Financial Years 2007-2009 and total for 2004-2009.

Brief Biography:

Following a career spanning fifteen years in public accounting and tax consulting, Anna Rachnel is now a full-time blogger. In her main blog, The Cancer Culture Chronicles, Anna writes about her personal experiences as a woman living with metastatic breast cancer, her observations of the surrounding breast cancer culture, as well as other important issues relevant to the breast cancer community. She also writes a magazine-style women’s interest blog at Can-Do Women. Hailing from Australia originally, Anna holds an Australian Bachelor’s degree in Accounting, and Masters’ degrees in Business Administration and Science from an American university. She is forty years old and lives in coastal New Jersey with her husband and small dog.

Be Sociable, Share!

2 comments to Komen By The Numbers: Education In Focus

  • Glad you’ve posted this Gayle.
    Anna, this work you’re doing on Komen’s accounts is deeply impressive and important. Giving us a very clear picture, not just of how a big cancer charity operates. But also of where all that money that all those people run, walk and dress up for actually goes. If significant portions of these resources you’re showing us could truly go into research on prevention and eduction on prevention, them imagine what we could achieve, in the US and here in Europe.
    We achieve nothing without this sort of data, so thank you using your immense skills for analysis so brilliantly.

  • […] Komen By The Numbers (26.01.2011) Komen By The Numbers: The Context of Research (31.01. 2011) Komen By The Numbers: Education in Focus (09. 02.2011) Komen By The Numbers: 2010 And Still No Answers (19.03. 2011) Factoids, […]

“Pink Ribbon Blues”

Paperback includes a new Introduction on fundraising controversies and a color insert with images of, and reactions to, the pinking of breast cancer (2012).


Praise » 

Flyer »

Press Release »

Hardback Cover »

Paperback Cover »

Request Review Copies »

Order the Paperback »

* GAYLE IN THE MEDIA *

"Seeing clearly through the pink haze" Toronto Sun

*Sad face*: Being happy does not help you live longer" New Scientist

How should we address breast cancer when norms continually change? The Guardian

Your Fun 'No Bra Day' Photos Are Overshadowing Terminal Breast Cancer Patients Broadly

Backlash against “pinkwashing” of breast cancer awareness campaigns BMJ

Breast Cancer to Rise 50 Percent by 2030? Hey, Not So Fast! Health News Review

Breast Cancer: The Flaws in the Cause iafrica.com

How to Make the Biggest Impact With Your Breast Cancer Donations Money

The Very Pink, Very Controversial Business of Breast Cancer Awareness Racked

NFL, Pink Ribbons Not Enough to Win over Women CNN

3 Questions We Need to Answer for Breast Cancer Awareness Month Chronicle of Philanthropy

The problem with National Breast Cancer Awareness Month Women's Health Magazine

Pink Ribbon Envy: Living with an Uncool Cancer The Nib

A Year After Bombings, Some Say 'Boston Strong' Has Gone Overboard NPR, All Things Considered

Canadian Mammogram Study KCRW, NPR Affiliate

Time to Debunk the Mammography Myth CNN

Breast Cancer: Awareness, Activism & Pinkwashing NPR Charlotte

Buying Pink Al Jazeera's The Stream Watch »

The Pink Backlash Orlando Sentinel

Why Jolie's Test Costs So Much CNN

Preventative Mastectomies: Disease and Deception BlogTalkRadio

Angelina Jolie and the 'Breast Cancer Gene' KCRW

Our Feel-Good War on Breast Cancer The New York Times Magazine.

The Story Behind the Pink Ribbon Campaign Sisters Talk Radio

WISH Interview Women's International Summit for Health

Making Cancer About The Patient, Not The Body Part CBS Pittsburgh

Sexy breast cancer campaigns anger many patients USA Today

The perils of pink The Daily

Komen pink campaign creates breast-cancer blues for some Dallas Morning News

A yellow flag for the NFL's pink New York Daily

Gayle Sulik named #7 in SharecareNow’s Top 10 Online Influencers in Breast Cancer

Breast cancer cancer causes so easily derailed Philly Inquirer

Komen Charity Under Microscope for Funding, Science Reuters

The Fight Against Cancer - And Abortion? Salon.com

Susan G. Komen For the Cure defunds Planned Parenthood. In Deep with Angie Coiro

Amid Breast Cancer Month, Is there Pink Fatigue? NPR's All Things Considered

How is Breast Cancer Culture Undermining Women's Health? America’s Radio News Network

Pink Ribbon Culture and Breast Cancer The Kojo Nnamdi Show

The Big Business of Breast Cancer
Marie Claire

Does Breast Cancer Awareness Month Crowd Out Other Diseases? Slate

Pink Inc. Has Many Starting to See Red The Sacramento Bee

Get Your Pink Off Ottawa Citizen

Komen Pink Ribbons Raise Green and Questions USA Today

** MORE MEDIA LINKS **
** MORE RADIO INTERVIEWS **